
Fun for the whole family
For a child with SMA, finding activities the whole family enjoys can sometimes be challenging. Check out these caregiver-suggested fun family activities for in and out of the home.
Navigating life with SMA after treatment
Navigating life with SMA after treatment
As the next chapter of your spinal muscular atrophy (SMA) journey begins since receiving treatment, you may have questions about what to expect. SMA Atlas is here to help guide you.
Even with treatment, your child still has SMA and may need additional support and resources. These articles, videos, and stories have been created with the help and insights from SMA caregivers. You’ll hear these caregivers share their stories, and receive advice and tips that can be used today and down the road. Let’s get started!
Finding a trusted healthcare team is key in managing SMA. Hear from 2 caregivers and their experience building their son’s care team after diagnosis and how they’ve adapted it over time.
For a child with SMA, finding activities the whole family enjoys can sometimes be challenging. Check out these caregiver-suggested fun family activities for in and out of the home.
Hear an SMA family describe the moment their son walked into class on the first day of school and why it means so much to them.
Every parent looks forward to their child reaching major milestones. Hear from one family about the importance of also celebrating inchstones and what that means to them.
Hear from caregivers who lived through losing their first child because there was no SMA treatment at the time, and what having SMA treatments now means to their second child and family.
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What is the most important information I should know about
ZOLGENSMA?
What is the most important information I should know about
ZOLGENSMA?
What should I watch for before and after infusion with
ZOLGENSMA?
What do I need to know about vaccinations and ZOLGENSMA?
Do I need to take precautions with the patient’s bodily waste?
What are the possible or likely side effects of ZOLGENSMA?
What is ZOLGENSMA?
ZOLGENSMA is a prescription gene therapy used to treat children less than 2 years
old with spinal muscular atrophy (SMA). ZOLGENSMA is given as a one-time infusion
into a vein. ZOLGENSMA was not evaluated in patients with advanced SMA.
The safety information provided here is not comprehensive. Talk to the patient’s doctor about any side effects that bother the patient or that don’t go away.
You are encouraged to report suspected side effects by contacting the FDA at 1-800-FDA-1088 or www.fda.gov/medwatch, or AveXis at 833-828-3947.
Please see the Full Prescribing Information.