
Maisie says, “Momma”
Watch as an SMA caregiver describes the moment her daughter said, “Momma” for the first time and why that single word meant so much for her to hear.
Navigating life with SMA
Navigating life with SMA
MORGAN: A really memorable moment for us was seeing Slade eat a popsicle for the first time.
MORGAN: Slade does not eat anything by mouth. He gets all of his nutrition through his G-tube.
MORGAN: So the fact that he had a juicy popsicle running in his mouth and down his face and didn’t have any issues from that was really cool to see.
DARYN: He was working really hard in speech therapy just to get a lot of those oral skills back. To get to see him use those skills that he had learned, but also to see the sheer joy and excitement and smile on his face the entire time––that was the coolest thing for me, it’s that step towards independence for him.
MORGAN: He’s getting stronger. He’s improving and just gives us hope that he’s going to continue to make little milestones like that.
Close the transcriptWatch as an SMA caregiver describes the moment her daughter said, “Momma” for the first time and why that single word meant so much for her to hear.
Hear about Olivia as she gets her first wheelchair, discovers her world, and finds some newfound independence.
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What is the most important information I should know about
ZOLGENSMA?
What is the most important information I should know about ZOLGENSMA?
What should I watch for before and after infusion with ZOLGENSMA?
What do I need to know about vaccinations and ZOLGENSMA?
Do I need to take precautions with the patient’s bodily waste?
What are the possible or likely side effects of ZOLGENSMA?
What is ZOLGENSMA?
ZOLGENSMA is a prescription gene therapy used to treat children less than 2 years old with spinal muscular atrophy (SMA). ZOLGENSMA is given as a one-time infusion into a vein. ZOLGENSMA was not evaluated in patients with advanced SMA.
The safety information provided here is not comprehensive. Talk to the patient’s doctor about any side effects that bother the patient or that don’t go away.
You are encouraged to report suspected side effects by contacting the FDA at 1-800-FDA-1088 or www.fda.gov/medwatch, or Novartis Gene Therapies, Inc. at 833-828-3947.
Please see the Full Prescribing Information.