
Slade’s first popsicle
Watch Slade taste the sweeter side of life in this video commemorating his first popsicle.
Navigating life with SMA
Navigating life with SMA
JOE: Traditionally, when you think about having a child with SMA, your focus is on the basic necessities of life: eating and breathing and those types of things, but to be in a position where we’re able to see our child stand and improve has completely raised the bar in terms of what our expectations are.
ANNIE: When she received her leg braces and was able to stand for the first time, the look on her face was one of the most incredible moments that I’ve experienced.
JOE: There’s something metaphorically so powerful about someone standing—and what that means—being able to, on their own volition stand, and for us as parents, is amazing to see that physical development.
ANNIE: I know that has to be such an incredible feeling for her to stand and be upright when all she’s known is sitting and laying down.
ANNIE: It made my momma heart just wanna burst.
Close the transcriptWatch Slade taste the sweeter side of life in this video commemorating his first popsicle.
It's the happiest of birthdays for Ryker, who turned 2 years old! Watch a video of his parents reflecting on this joyous occasion while making lifelong memories.
Check out resources and advice from other caregivers to help you navigate your child’s future with SMA.
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What is the most important information I should know about
ZOLGENSMA?
What is the most important information I should know about ZOLGENSMA?
What should I watch for before and after infusion with ZOLGENSMA?
What do I need to know about vaccinations and ZOLGENSMA?
Do I need to take precautions with the patient’s bodily waste?
What are the possible or likely side effects of ZOLGENSMA?
What is ZOLGENSMA?
ZOLGENSMA is a prescription gene therapy used to treat children less than 2 years old with spinal muscular atrophy (SMA). ZOLGENSMA is given as a one-time infusion into a vein. ZOLGENSMA was not evaluated in patients with advanced SMA.
The safety information provided here is not comprehensive. Talk to the patient’s doctor about any side effects that bother the patient or that don’t go away.
You are encouraged to report suspected side effects by contacting the FDA at 1-800-FDA-1088 or www.fda.gov/medwatch, or Novartis Gene Therapies, Inc. at 833-828-3947.
Please see the Full Prescribing Information.