
Slade’s first popsicle
Watch Slade taste the sweeter side of life in this video commemorating his first popsicle.
Navigating life with SMA
Navigating life with SMA
KIRSTEN: A memorable moment is getting her first wheelchair and watching her figure it out and discover the world around her. As an opinionated 2-year-old, those are really important things to be able to do.
CODY: She’s able to go out and explore on her own, it gives her independence. She’s able to get into trouble, which is actually a good thing.
KIRSTEN: If she needs to go one way, I’m trying to push her one way, she’ll put the brakes on and just hold onto her wheel so that she doesn’t have to go anywhere.
KIRSTEN: She will leave the room that we’re in, and I think it’s because we’re around her so much, and so she's like, “Finally, I can get some peace and quiet by myself and I don't have to be around you people all the time.”
KIRSTEN: It’s just watching her be her opinionated self and be able to move around on her own and do all these things—it’s amazing.
Close the transcriptWatch Slade taste the sweeter side of life in this video commemorating his first popsicle.
Hear an SMA family describe the moment their son walked into class on the first day of school and why it means so much to them.
Check out resources and advice from other caregivers to help you navigate your child’s future with SMA.
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What is the most important information I should know about
ZOLGENSMA?
What is the most important information I should know about ZOLGENSMA?
What should I watch for before and after infusion with ZOLGENSMA?
What do I need to know about vaccinations and ZOLGENSMA?
Do I need to take precautions with the patient’s bodily waste?
What are the possible or likely side effects of ZOLGENSMA?
What is ZOLGENSMA?
ZOLGENSMA is a prescription gene therapy used to treat children less than 2 years old with spinal muscular atrophy (SMA). ZOLGENSMA is given as a one-time infusion into a vein. ZOLGENSMA was not evaluated in patients with advanced SMA.
The safety information provided here is not comprehensive. Talk to the patient’s doctor about any side effects that bother the patient or that don’t go away.
You are encouraged to report suspected side effects by contacting the FDA at 1-800-FDA-1088 or www.fda.gov/medwatch, or Novartis Gene Therapies, Inc. at 833-828-3947.
Please see the Full Prescribing Information.