
Stella’s good hair day
Stella’s parents thought they might never experience the peskier parts of having children. Hear how Stella surprised them and made a memorable moment the first time she grabbed a fistful of her mom’s hair.
Navigating life with SMA
Navigating life with SMA
Celebrating special moments in your child’s life can give you a new appreciation for what is possible when living with spinal muscular atrophy (SMA) even after treatment. Hear how caregivers celebrate each moment in their unique way.
Stella’s parents thought they might never experience the peskier parts of having children. Hear how Stella surprised them and made a memorable moment the first time she grabbed a fistful of her mom’s hair.
Even though children with SMA can experience difficulties with eating and swallowing, Slade is making progress. Watch him taste the sweeter side of life in this video of him eating his first popsicle.
Watch Brady’s parents recount the time he pulled himself to stand independently in his walker.
Hear about Olivia as she gets her first wheelchair, discovers her world, and finds some newfound independence.
It's the happiest of birthdays for Ryker, who turned 2 years old! Watch a video of his parents reflecting on this joyous occasion while making lifelong memories.
For Lucy, having a supportive sibling has made for many fun and memorable moments. Watch how these sisters work together to strengthen their bond.
Hear Joe and Annie recount the time their daughter, Quinn, received her leg braces and how that moment has shaped their hopes for Quinn’s future.
The times when children are proud of themselves are heartwarming moments for parents. Watch Natalie’s parents talk about one such moment and the impact it had on their family.
When the Swiss Alps called, Evelyn answered. Read about the adventure her family never thought they would experience because of Evelyn’s SMA.
Hear an SMA family describe the moment their son walked into class on the first day of school and why it means so much to them.
Hear an SMA caregiver share the moment her daughter said, “Momma” and why that one incredible word meant so much to her.
Check out resources and advice from other caregivers to help you navigate your child’s future with SMA.
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What is the most important information I should know about
ZOLGENSMA?
What is the most important information I should know about ZOLGENSMA?
What should I watch for before and after infusion with ZOLGENSMA?
What do I need to know about vaccinations and ZOLGENSMA?
Do I need to take precautions with the patient’s bodily waste?
What are the possible or likely side effects of ZOLGENSMA?
What is ZOLGENSMA?
ZOLGENSMA is a prescription gene therapy used to treat children less than 2 years old with spinal muscular atrophy (SMA). ZOLGENSMA is given as a one-time infusion into a vein. ZOLGENSMA was not evaluated in patients with advanced SMA.
The safety information provided here is not comprehensive. Talk to the patient’s doctor about any side effects that bother the patient or that don’t go away.
You are encouraged to report suspected side effects by contacting the FDA at 1-800-FDA-1088 or www.fda.gov/medwatch, or Novartis Gene Therapies, Inc. at 833-828-3947.
Please see the Full Prescribing Information.